In the words of Drew Carey from “Whose Line is it Anyway”…
WHERE THE RULES OF THE ROAD ARE MADE UP AND THE TRAFFIC LIGHTS DON’T MATTER.
This episode is all about our adventure to Westford, MA for the first HCU Conference by HCU Network America! We had SUCH a great time at the conference, and heard from many incredible speakers including Dr. Kimberly Chapman, Dr. Benjamin D. Goodlett, Dr. Harvey Levy, Margie McGlynn, and more. Every speaker has put their heart into working with inborn errors of metabolism and advocating for rare diseases. Thank you to you all!!
More on the conference…
Lindsey’s perspective: I learned so much about HCU that I didn’t know before! I work in the medical field, and it was so great to hear very “medical” perspectives of the disorder. It made me understand my husband’s treatment more clearly and understand where the research for a cure is going towards.
Ben’s perspective: There was a TON of low protein foods. IT. WAS. GREAT.
HAHAHA!! In all seriousness though, we loved the conference. We cannot wait for the next one!! We definitely recommend that you try to go. Having the experience of meeting others with the same diagnosis as you/your family member was an experience that was overwhelming in the best of ways.
In this episode, we discuss different aspects of traveling with HCU as well, including tips and tricks we have learned along the way about getting your medicine through TSA, packing so you don’t run out of medications (or have it lost in luggage!), and planning for the trip once you get to your destination.
And now for….
LINDSEY’s LO PRO BITES!
This week’s recipe is Jackfruit “Pulled Pork”, rated on a scale of 4.75/5 horned melons (our random fruit of the day).
If you can find a can of jackfruit, this is one of the easiest. meals. EVER.
2-3 cans Trader Joe’s canned jackfruit (Make enough to last a while and eat on it for lunch at work or school!)
Lowest protein BBQ sauce I could find
1/4-1/2 cup vegetable broth
Spices: Salt, pepper, liquid smoke, garlic*.
*Disclaimer. We legit put garlic on everything. everything is better with garlic. JSYK.
Drain and rinse the Jackfruit (it’s in a brine). We cut off the core of the fruit, however we have had it with the core too and it usually will soften! Either way will work!
While you are doing that, have some onions getting soft in a skillet w/ some oil, ghee, or butter.
Add the JF to the onions once they are soft. Add in your vegetable broth, as needed. You don’t want to add too much or there will be too much liquid in the pan.
Add BBQ sauce, salt and pepper, garlic, and a touch of liquid smoke. Let it simmer until soft and it soaks up the sauce.
Use a spatula or two forks to break up the JF so that it is more of a pulled pork texture.
VWAHLAH! The best non-meat-pork-sandwich-EVER.
I usually make things on the fly, but this recipe is similar to what I did and will give you some measurements for your ingredients! Check it out here!
That’s a wrap! Maybe a JF pulled pork wrap?? …Ideas….
Ben and Lindsey
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